Saturday, November 2, 2024

My Dunkin Dilemma

 On November1st it only feels right to write.  I have written 1000 or more words every November 1st for the last 14 years, often starting at the stroke if 12am.  Today, with no Nanaowrimo worth participating in, I feel a little lost.  I did not think about or organize an outline for a novel in October.  I didn’t meet with my writer friends and plan an event to kick off anything.  There was no overnight party or writing frenzy at midnight.  This year feels so quiet and uninspired.   I miss it all and yet I am somewhat relieved to have it behind me.  I can still write.  My writing buddies are all still here and will meet from time to time.  We can get together and plan our own events in a month not hounded by the pressures of the upcoming holidays or the impending cold season.  Maybe March can be our new novelling month.  The coming spring will inspire us to bring new life to unknown worlds and create unforgettable characters ready for their own epic journeys.

I find myself still itch9mg to write.  I often feel compelled to start writing my blog again each January for the new year.  I frequently make a pledge to write daily in the new year and I have never managed to do it.  I last maybe a week.  A few years I managed to get some posts done over the course of several months, but never the daily writing I first intended.  I know that the discipline to write everyday is necessary for me to improve my skills and reach my writing goals.  Why is it so hard to do it? 

My new plan is to use November, not to write another lame unfinished novel, but to practice writing every day.  I will post to my blog.  Eventually I want a new blog, but for the sake of not putting this off I will resurrect a very old blog.   I won’t be reaching Nano word counts, but I am putting forth an effort.  Somedays there may be a couple of posts.  I have a lot to say, and I am constantly lecturing in my head.   If I can express even a little of it in the written word, I will feel accomplished. 


 

My Dunkin problem.  I can’t walk yet.  I am working on regaining the strength and balance to walk independently again, but it is a long slow process.  I am also on clinic hemodialysis three days a week.  So on those days, my husband goes to work at the normal time, then has to come home to get me.  When he gets home we have about fifteen minutes to get me washed up, dressed, onto my scooter, out of the house, down the ramp, load me and the scooter into the car, and leave.  I am at dialysis until he gets out of work, leaving me gone from the house for almost 7 hours.   I am not allowed to eat at dialysis (policy) so if I don’t eat breakfast, I don’t eat until dinner.  On the way to the clinic, we drive near 3 Dunkins.  It’s New England, surprising there aren’t 10.  I get the $6 meal with a medium hot coffee, breakfast sandwich, and hash browns (the hash brown is part of the deal, it would be rude not to eat it). 

I scoff down the food on the 20-minute ride.  Then sit, hooked to a machine, for 5 hours.  Dialysis takes a lot out of the body, figuratively and literally.  It removes toxins the kidneys would remove if they functioned.  It also removes 1 – 4 kilos of fluid, depending on one’s gain since the last treatment.  That is roughly 2 – 9 lbs removed from the body in 4 -5 hours.   It can be quite hard on the body, not to mention sitting in an uncomfortable recliner for that long.  When I get in the van, I am weak, tired, and famished.  The only things I want at that moment are caffeine and food.  This often leads us back to Dunkin on the way home.  I do love the Berry Spark’d  drink.  My routine works for us…timewise; but not so much budget-wise.  I have asked for Dunkin cards instead of gifts for anything and everything.  I am not proud. 

If you would like to help support me getting to dialysis fed, please feel free!  You can gift Dunkin cards right from the Dunkin App… upper left menu  >  Send Gift Card>  fill out the form and choose a card.  You can send it email or text.  My email is Nikitazkya@aol.com. You can use my given name (if you know it) or Nikitazkya.  I can also receive help @nikitazkya on venmo.

Friday, November 1, 2024

Nanoless November

 On November 1st it only feels right to write.  I have written 1000 or more words every November 1st for the last 14 years, often starting at the stroke if 12am.  Today, with no Nanaowrimo worth participating in, I feel a little lost.  I did not think about or organize an outline for a novel in October.  I didn’t meet with my writer friends and plan an event to kick off anything.  There was no overnight party or writing frenzy at midnight.  This year feels so quiet and uninspired.   I miss it all and yet I am somewhat relieved to have it behind me.  I can still write.  My writing buddies are all still here and will meet from time to time.  We can get together and plan our own events in a month not hounded by the pressures of the upcoming holidays or the impending cold season.  Maybe March can be our new novelling month.  The coming spring will inspire us to bring new life to unknown worlds and create unforgettable characters ready for their own epic journeys.

I find myself still itching to write.  I often feel compelled to start writing my blog again each January for the new year.  I frequently make a pledge to write daily in the new year and I have never managed to do it.  I last maybe a week.  A few years I managed to get some posts done over the course of several months, but never the daily writing I first intended.  I know that the discipline to write every day is necessary for me to improve my skills and reach my writing goals.  Why is it so hard to do it? 

My new plan is to use November, not to write another lame unfinished novel, but to practice writing every day.  I will post to my blog.  Eventually, I want a new blog, but for the sake of not putting this off I will resurrect a very old blog.   I won’t be reaching Nano word counts, but I am putting forth an effort.  Somedays there may be a couple of posts.  I have a lot to say, and I am constantly lecturing in my head.   If I can express even a little of it in the written word, I will feel accomplished.  

Monday, May 11, 2015

Birds of Maine

I am going to start documenting some of the beautiful birds I find just outside my window.  I suffer from a few chronic health conditions that require me to have quite a lot of bed rest.  Luckily, my bedroom window faces the yard with all my lilac bushes and bird feeders.  I often lean out the open window and use my zoom lens to capture a number of different birds dining on my cheap feeders.   I have quite a collection of pictures and I am trying to learn the identities of all the different species that frequent my yard.  Over the past couple years there has been quite a variety and I have a lot of great photos.   I will share them here, with the tag BIRDS.

Here are the bushes and feeders as seen from my window.











The Dogwood tree (more of a bush since it was hit by a truck 5 years ago)













The cheap blue bird feeders...  popular, like the birds don't even know they are eating at $5.99 feeders.


More soon...  write on!

Monday, March 2, 2015

What the f**k is wrong with you?

I have been asked many times "Hey,  what the f**k is wrong with you?"  So I wanted to write a little something to explain.

  Fibromyalgia - Pain, Pain, more pain  and irregular restless sleep just in case the Pain wasn't enough.
       -  This also accounts for Irritable Bowel Syndrome, brain fog, joint stiffness, TMJ, muscle spasms, extreme nerve pain, numbness and that wonderful pins and needles sensation...

  Orthostatic hypo tension - when I stand up,  often times my blood pressure will drop suddenly, leaving me very dizzy and occasionally unconscious.

  End Stage Renal Disease - I have zero kidney function, zero
(yes I am on dialysis, thank you for asking)
           -  This also causes high blood pressure (with goes nicely with the above mentioned sudden drops) congestive heart failure (if I drink too much fluid) weakness and more fatigue, because I didn't have enough.

   Tinnitus -wonderful high pitched noise in one or both ears...  quite lovely really,  as long as you don't want to hear anything else and do not currently have a headache.

  Tachycardia - my heart rate is usually above 100.  no matter what I am doing,  this combined with sometimes very low blood pressure can be a real treat.

  Asthma - when I get sick,  just for fun,  I also can't breathe

  Plantar Fasciitis - Pain in the feet caused by tight calf muscles...  ow,  just ow.  Every step.  OUCH  I wear burks, I get yelled at a lot for my footwear,  but y'all can bite me.  (yes I do the stretches)

  Arthritis -  more pain,  but not just pain,  swelling and stiffness too

  Unknown Seizure Disorder - if I have a few more Grand Mal seizures, it will be called epilepsy, but right now it is still "unknown seizure disorder"

  Dry skin  -  itches like a son of biscuit

  Hang nail -  those things hurt

  Migraine - yup,  more pain and sometimes nausea, along with a sensitivity to light and sound (have any of you met my daughter?)

  Sarcastic attitude - diagnosed as a teenager,  no cure yet,,, and I think it is hereditary because my kids also seem to suffer this one.

This is the list when I am well...  occasionally I get sick.

So,  next time you see me and want to ask "What the hell ails you?"  I refer you to this list.

Thank you. and WRITE ON!

Sunday, November 9, 2014

Miracle Worker

The cast and crew for the Miracle were excellent and so much fun to work with.

Our adventure began in late August when we auditioned for the show.  I always request a small part because my energy levels cannot keep up with the demands of a larger role on stage.  I did a general audition and got the part of the house keeper, Viney.    The big news was that Ashleigh auditioned as well as got the part of Annie Sullivan.  She was super excited.

The show was difficult to practice as we were stuck in the library basement for the first weeks and a few of our cast were unavailable to start.  It was slow going and nothing really felt right until we got into the theater and were allowed to practice on our real stage.

The show is VERY demanding physically and emotionally.  I was very glad I had the role I did.  It was about all I could handle.  I had to set the table a few times,  pump water a couple of times and had a handful of lines.   Ashleigh was the bulk of the show.  She had so mush to do on stage,  I am really not sure how she remembered it all!  She did an amazing job with lines, physical stage work and covering for her cast-mates who struggled with remembering their parts.   We opened Nov. 1st, then had the Sunday show cancelled due to weather.  The following weekend we held all three shows to decent audiences.  The show itself did not pull in the audiences the same way that Wizard and Godspell had,  but it still did pretty well.   Everyone agreed that Ashleigh and Olivia (Helen) were amazing!

Saturday, September 13, 2014

Grand Mals

Written after the fact and post dated so I can remember when it all happened...

On Saturday, September 13, 2014 I woke up around 6AM and hustled into dialysis.   I arrived at dialysis and Brandon called me right in.  I got on the machine right around 7AM, the usual time.    Dialysis itself was fairly uneventful.  My foot and right ankle cramped around 11:30 and Gerard gave me some saline.  I stood up on my foot and the cramping eased off.   I remember sitting back down and dozing a bit.   The next thing I remember is the ER.   I woke to find myself in the emergency room.   My former classmate Shirley was there as one of my nurses.   I had an IV in my hand and was told I had a seizure at dialysis.   I recall bits and pieces of the ER.  I woke again to find myself in room 132 of the hospital Saturday afternoon.   I was told I had another seizure in the ER.   I also had a CAT scan at some point on Saturday, though I have no memory of it.   I am told that my mother visited.   I remember nothing of Saturday.    I have a faint memory of coffee ice cream.

2 Grand Mal Seizures out of no where for no known reason.

I was in the hospital until Tuesday.  They found no reason for the seizures and put me on an anti-seizure med called Keppra.   The neurologists found no abnormal activity in the test results  (they looked at my brain,  found nothing (hahaha))  One more thing to add to my growing list of concerns and ailments and yet another thing to raise my anxiety...  yeah me.

Sunday, May 25, 2014

Anemia, what a good time.

So...  the rest of May was interesting.    These events began on May 17th and I was home safe and sound on Friday May 23rd.

   Almost died.   I don't recommend it.

     In March, April and May I had a health issue and ended up having a minor surgery.

 After being in and out of the ER at CMMC over the weekend, and a terrible time at dialysis in Auburn on Monday (5/19), they finally decided to do the surgery.  Although I was anemic,  they avoided giving me blood transfusions as it can make it harder to get transplanted in the future.  The surgery was done on Tuesday after dialysis in Augusta (since I bailed on Auburn early).  It wasn't too big a deal,  until...

 I came home from the hospital on Wednesday afternoon and  could not feel OK.    I had come home and was out of my head, started panicking about feeling so sick and dizzy.  I was basically freaking out.    Finally,  I called 911 and was taken back to CMMC.   I spent the evening in the ER with several nurses and Dr.s fretting over me.   I remember them telling me they needed to start IVs.  It took a life flight team with an ultra-sound to get 2 IVs working.  One to give me blood transfusions,  the other for anything else.  Scott stayed by my side the whole night.   No one was sure if I was bleeding internally from the surgery, or if something else was going on.   Eventually I was admitted to ICU and given another unit of blood.  I remember thinking that my ICU nurse looked about 14.  She was very nice.  I began to feel less out of it as the night went on.  They sent Scott home and gave me sedatives.

By morning I was feeling MUCH better.  They admitted me to a regular room for observation.  The IVs were painful,  but I cannot describe the feeling of being that anemic.  I had dialysis at CMMC on Thursday and went back home on Friday.  On Saturday I was back at the Kidney Center in Augusta.  By the next week it was business as usual.

Amazing that you can go from ICU to fine in a few days.